Patient Perspective: Vivian Diaz Espinosa
Words from Super Woman…. “You have cancer.” Those are three of the most frightening words anyone can hear. Me? What? No…I don’t get sick. I am Super Woman, I take care of everyone. My kids are so young, 10 and twin 6 year-olds. What if it spreads? After lots of MRI’s, scans and biopsies on my right breast, in addition to those on my left breast where the tumor was originally found, the right breast cleared. OK, good! On April 28, 2014, I underwent a double mastectomy and reconstructive surgery. The results of the pathology test showed 2 areas of cancer in the left breast and one in the right breast too! What can I say, I am a bit of an over-achiever. Thank God I stuck to my guns and had a double mastectomy, despite the fact that the variety of breast cancers I had were all Stage I and with very good prognoses. A few months after my surgery, I was referred by my doctor to TurningPoint for physical therapy. I had heard many good things about TurningPoint from my cousin, who had breast cancer a few years before, but it wasn’t until I experienced it for myself that I realized TurningPoint is more than just physical therapy; it’s mind, body and soul therapy, https://neurofitnessfoundation.org/xanax-alprazolam/. You meet and talk to many women with various forms of breast cancer–women who are patients and also women who work there. They get your pain. They understand your fears, and were able to explain so much to me, because many of them have been there. At one point I was feeling guilty… I felt guilty that my cancer was not as bad as others, yet I felt scared, and lost. What right did I have to feel like that? My physical therapist noticed that I was a little down, and asked what was wrong. My mouth betrayed me, and told her everything. She very firmly and lovingly told me “Don’t minimize your cancer. You have every right to feel scared and lost; everyone’s cancer journey is different, but just as scary.” I will never forget her words. TurningPoint did not just provide physical therapy, but a safe haven where I could share my feelings, ask all my crazy questions without any judgment, and learn how my body was healing. I am grateful for all the support these ladies have given me during that very vulnerable time. There really aren’t enough words to express how lucky I am to have found a new family at TurningPoint where even a super woman like me can feel totally comfortable leaving her cape at the door.
February Patient Perspective
Rachel Davidson I had my first mammogram at age 32. It would be my last. The mastectomy took care of that. Young. Not overweight. Breastfed two babies. I was low risk in every sense. It was the beginning of breast cancer awareness month. I was aware and did what I was supposed to do. None of the medical professionals expected that little lump to actually be cancer. However, 2 days after the biopsy the doctor confirmed I had joined the club no one wants to join. Breast cancer awareness month felt like a celebration and I was in no mood to celebrate. Or see all the pink. Just over a year later, I am beginning to again appreciate breast cancer awareness month. And pink. Throughout my journey with breast cancer, I learned a lot I never imagined I would learn – or at least, not this early in my life when I was trying to focus on raising two young children, maintaining a happy and healthy marriage, and staying busy with a fulfilling career in child welfare. I underwent a double mastectomy followed by radiation and long term anti-hormone medication. As a side effect, I am able to commiserate with my mom about hot flashes. No one prepared me for the possibility of needing physical therapy, but my plastic surgeon graciously referred me to TurningPoint following my initial surgery. One of the most healing aspects of this journey was the treatment and support I received there – both physically and emotionally, http://www.papsociety.org/ambien-zolpidem-10-mg/. The care, compassion, patience, guidance, and knowledge they provided were such that only someone personally familiar with breast cancer could. And the silver lining? Best massages ever. I am somewhat uncomfortable when people tell me I am strong or an inspiration, since I merely showed up for the doctors to care for me. I cried plenty of times. I get anxious about a recurrence. But I know such thoughts are normal. I will move on and put this behind me, because I have hope for the future. I have hope that I will continue to raise my amazing children alongside my incredibly supportive, humorous, loving husband. I have hope for my professional future. And I have many people to thank for that – medical professionals, family, and friends. A year ago, cancer was an ugly word. I now see it as a blessing. It brought me closer to my husband. It encouraged me to truly relish in the delight and wonder that are my incredible children. It introduced me to many amazing women. It reinforced that I am surrounded by more love and support than I ever could have imagined. It also reminded me to be sensitive to others, as everyone has a battle they are fighting – whether you know it or not.
January Patient Perspective
Wynetta Scott-Simmons I have always enjoyed learning; possessed a healthy thirst for the power of and comfort found in knowledge. That thirst led me to enroll in an elective high school class that explored world religions. It was in that class that I was introduced to the concept of karma. As a result of my teenager-framed interpretation of this life view, during those formative years, and in fear of upsetting the balance of my personal life continuum, I have worked to live by a religious-based moral compass and have also been a self-proclaimed rule follower ever since. Anyone who knows me will tell you that my life mantra is – Carpe Diem! But do no harm – live smart, live honorably, live fully present, live healthy, and ultimately live happy; chief among these has always been an endeavor to live healthy. Each year I scheduled my annual physical to occur on or near my birthday, as a symbolic gift and proof of my smart and healthy living. My 56th year was no exception. My life, to that point, had been a living blueprint of the stay healthy tips promoted by the American Cancer Society; staying at a healthy weight, healthy eating, taking part in an energetic exercise program, not smoking, and establishing a schedule for getting the recommended screening tests. My breast cancer diagnosis knocked me completely off of my balance-attuned orbit. Upon hearing the news I tried unsuccessfully to pinpoint the exact life action that had caused this disruption in my karma, in my life balance. My doctor, of sixteen years, unable to find the appropriate words with which to convey the test results had resorted to medical terms. Poorly differentiated carcinoma?! I understood each word individually. Spoken together in a medical context they made little sense. They made even less sense when applied to me; the rule follower, the life lived in balance. Poorly differentiated carcinoma?! Infiltrating ductal carcinoma?! Triple negative?! 3.3 centimeters?! The literacy professor in me tried desperately to tie each word to some pre-existing knowledge, some schema which might lead to a deeper level of enlightenment. However, in those first days following receipt of my diagnosis, balance had been destroyed and no karma-justified meaning, no understanding, no clarity, no comprehension was forthcoming. My mind did, however, instantly make connections between the news of this diagnosis and a host of possible ramifications for my immediate family – for my husband and our two daughters. In those first days post diagnosis and without full understanding of the specifics of my unique cancer profile I wondered just how many more momentous life events we would all witness together – birthdays, vacations, promotions, anniversaries, weddings and grandchildren. The triple negative nature of my diagnosis and size of my tumor added a sense of urgency to my need to begin a treatment plan. While still struggling to make sense of the news of my diagnosis, I resorted to the comfortable process of searching for knowledge. We researched the unfamiliar medical terms listed in every line of my diagnosis paperwork. We systematically collected referrals, read references, poured over evaluations, visited, interviewed, and made critical decisions about oncologists, surgeons, and plastic surgeons, and hospitals. The movie-reel version of my life, during that period, seemed to progress at a frenetic and chaotic pace, while simultaneously moving at a deliberate and measured pace. We know now that a divine hand was at work in bypassing waitlists, opening appointment doors, and ultimately assembling a team that would save my life; my dream team. Carpe Diem became my team’s battle cry and it helped me to focus on waging war against this uninvited infiltrating force! My assembled team – a renowned oncologist, celebrated surgeon and plastic surgeon, respected radiologist, phenomenal group of oncology and radiation nurses, my family, and a host of friends helped me to successfully conquer sixteen weeks of chemotherapy, vena cava filter placement surgery, six weeks of daily radiation treatments, bilateral mastectomy surgery, tissue reconstruction and expander insertion surgery, skin graph surgery, http://www.papsociety.org/accutane-isotretinoin/ and the final implant transfer and nipple construction surgery. Even after waging a successful fight to rid my body of the abnormally fast-growing cancer cells, my karma-tic turmoil had yet to settle. A new diagnosis of adhesive capsulitis (frozen shoulder) triggered a referral to TurningPoint. This medical diagnosis proved to be a pivotal moment in the process of rebuilding and adding to my life rather than the cancer diagnosis that had resulted in the process of breaking down and subtracting from my life. The individualized and focused care provided by the therapists at TurningPoint was specific to my particular and unique bodily needs as a breast cancer survivor and post-mastectomy patient. The therapists were committed to increasing my shoulder range of motion. They also validated my questions, affirmed my suspicions, and allayed my concerns, while arming me with the informational tools necessary to serve as my own self-advocate. With each session I began to regain my confidence. Everyone at TurningPoint helped me to restore a level of calm, a sense of balance and a renewed sense of positive karma to my life. The information, knowledge, and therapeutic strategies that I received at TurningPoint helped me to see that my new normal need not be one of limited mobility, ability, or possibility. My fighting mantra had been revived. Carpe Diem! – live smart, live honorably, live in the moment, live healthy, and live happy. I will be eternally grateful for the care and support I received at TurningPoint.
Exercise for Breast Cancer Survivors: How much is enough?
Early detection and improved treatments for breast cancer have resulted in better prognosis for patients. A recent review of research related to physical activity and breast cancer confirmed that exercise decreases risk of recurrence, increases quality of life, bone mineral density and strength and decreases fatigue and pain in breast cancer survivors. The study concluded that based on scientific data, breast cancer patients should be recommended to participate in rehabilitation programs including aerobic and strength training.(1) Many breast cancer survivors, however, are not sure how and when to proceed and ‘how much is enough’ exercise. The American College of Sports Medicine (ACSM) has exercise guidelines for cancer survivors.(2) The ACSM concluded that exercise training is safe during and after cancer treatments and results in many benefits for the patient. The amount of exercise recommended is 150 minutes of moderate exercise per week and 2 to 3 weekly strength training sessions of the major muscle groups. During the development of a physical activity program, it is important to consider pre-diagnosis fitness level, an understanding of the limitations that may be present due to surgical interventions and treatment of the cancer, and other medical conditions. A program should be tailored to a survivor’s needs, abilities, medical condition and interests. At TurningPoint, the physical therapists will evaluate each patient and their condition and create a program specifically to meet her needs. This can be monitored during treatment at TurningPoint and progressed as the patient regains more strength and flexibility. After discharge, appointments can be made for exercise consultation to review and advance the program as needed. TurningPoint also offers group fitness classes including Yoga and Pilates to help encourage flexibility and strengthening within a safe environment. Evigor S, Kanvilmaz S. Exercise in patients coping with breast cancer: An overview. World J Clin Oncol. August 2014, 10;5(3):406-11. Schmitz, Kathryn H. et al. American College of Sports Medicine Roundtable on Exercise Guidelines for Cancer Survivors. Med Sci Sports Exer. July 2010, 42;7:1409-1426
